Matt Embry demands change at the MS Society of Canada


– Hello and welcome to MSHope.com, a free resource of information
for people affected by MS. I have created this new video to address why I believe the MS Society of Canada needs major change to
better help people like me and others with multiple sclerosis. As many of you will know,
the MS Society of Canada recently threatened
legal action against me over the design of a logo
I was using on this site and in the videos I
created to share with you my journey with MS and the
strategies that I’ve used to remain symptom free for over 20 years. Although this was alarming,
I changed the logo to avoid what could be a stressful, time-consuming, and expensive lawsuit. They also asked me to make
it clear on my website that I had no affiliation with the MS Society of Canada in writing. My friends, this experience
has bothered me deeply, but I am proud to say that
I will have no affiliation with the MS Society of Canada
until major changes are made. This country has thousands
of generous and giving donors to the MS Society of Canada. They give with the hope that their money will be used to help people
with MS, and to find a cure. I do not believe people give
to the MS Society of Canada to hire expensive lawyers
to threaten people with MS. And, upon further
research, I think Canadians should be aware of how their donations are actually being spent by
the MS Society of Canada. By simply accessing their registered charity information returns on the Canadian Revenue Agency website, which is publicly available,
we can take a closer look. From 2010 to 2013, the
MS Society of Canada had a total revenue of about $211 million. That’s almost a quarter billion dollars. Of that money, $76 million
were spent on salaries for the employees of the
MS Society of Canada. $86 million were spent
on fundraising expenses, and $32 million was spent on
research to find a cure for MS. So, to be clear, my math indicates that of every dollar donated
to the MS Society of Canada from 2010 to 2013, 36 cents went to pay for salaries, 41 cents of that dollar went
to fundraising activities, and only 16 cents was spent on research. That’s right, only 16 cents for every dollar went to research. This may explain why in
2014, Money Sense magazine gave the MS Society of Canada a D rating in charity and fundraising efficiency in the review of major Canadian charities. What’s worse, between 2010 and 2013, the amount of money the MS
Society spent on research declined from about $9
million to $7 million. This is an almost 25 percent reduction in research investment. The MS Society of Canada keeps telling us that they want to end MS,
yet they keep spending less and less on research each year. Meanwhile, the salary spending
continues to increase. Again, nearly 75 percent
of the money donated to the MS Society of Canada is
spent on generous salaries and fun-filled fundraising
events that many people with MS cannot even participate in. And how much of the millions of dollars in fundraising expenses is spent flying MS Society executives to golf tournaments? These numbers bother me,
and I hope they bother you. This is the MS Society of Canada. This is a society that was
created for people with MS, to defend us, to represent
us, and to find us a cure. And given that only 16
percent of their revenues are spent on researching a cure for MS, I question who this society is truly for. It is clear to me the MS Society
of Canada has lost its way. It has been transformed from
a client-centered organization into a money-driven, lawsuit-threatening, fast-food promoting organization, which in my opinion, is
completely out of touch with the best interests
of persons with MS. Major change is needed
to bring the society back to why it was created in the first place. A good start would be
an immediate restructure of all the high-paid senior executives who have taken the
society so far off course. Another much-needed
change is to cut all ties with medical professionals who receive money from drug companies. I understand that I am suggesting a major overhaul of the
MS Society of Canada, but I believe it needs to be done before I can affiliate myself with them and for the sake of those with MS. Until this occurs, I will
continue to share my story and the strategies that will not be found on the MS Society of Canada’s webpage. I will only affiliate myself with hope. This is a different way, this is MS Hope.

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